Multiple Sclerosis,not a Killer But a Pain
Well,as you may know from my About Myself page,I suffer or not suffer fromPPMS(Primary Progressive Multiple Sclerosis).This if you are unaware,is an inflammatory disease of The Central Nervous System-Brain and Spinal cord.I have had many discussions with my Neurologist and what that translates into is,that it is a disease of the white matter tissue.You may ask as I did,”What exactly is White Matter”;at first it sounded like a spot you could pop.It turns out that white matter is made up out of Nerve Fibres,which are responsible for the transmission of signals(communication signals)between the various parts of the body and the Central Nervous System,also viva-versa.
So what exactly Does Multiple Sclerosis Cause
Well surrounding these nerve fibres is a protective insulating sheaf called Myelin,almost every one has it from birth,however the problems begin when the central nervous system,sees this myelin as a potential threat or foriegner to the body and begins systematically to attack it with the bodies own defence system,the white blood cells.
It is a very difficult disease to treat,due to it being so unpredictable and variable in different sufferers.Some sufferers may have whats called relapse/remitting MS,which pretty much speaks for itself.A degeneration followed by a period of repair.Unfortunately,PPMS has the continual damage done to the system but with no repair period.
Diagnosed With Multiple Sclerosis
F irstly,when I was Diagnosed 4 years ago by my neurologist,I felt that this was not a big deal.I believed and saw myself to be emotionally stable and fit enogh to say ,” Mañana;I will deal with it later”.Gradually I and otherw noticed changes in my body and behaviour;my balance and senses of co-ordination were getting worse,my attention spans were getting shorter,I was quicker to flare up in anger,my patience with others began to erode and still does today if I am not aware of it.
Worse of all My sight and vision was and is gradually getting worse.To the point where now I cannot see the computer unless my nose is stuck to the screen. So off I go the Optician,where I am informed that she/he cannot prescribe me glasses without a check up by a specialist Opthamologist.My point being here,is that I cannot simply go in to the shop,buy glasses and see.I have to wait until seen by a specialist.This took four months of walking in to things,stumbling and generally tripping around the house and streets.Continually I get stopped by the police in the namre of being Drunk and Disorderly.Not so much the Disorderly.I have the urgent need sometimes,to go to the toilet. If there are no public toilets,I have to find a quiet corner away from the public.If I cannot hold on the natural functions of the boby take over.
This may seem a trivial,if nausus topic and sight for some people.But believe me when I say,it is soul destroying and and causes me and others in my company,endless embaressment.I have always been a positive, look forward to- tomorrow man,this will not change as it is something intrinsically with in ME.
I am a luckey person, in that my Finnish wife stands beside me,many relationships faulter and end sadly.There was some good news the other day though,my glasses will be available and ready to pick up next week.;Next thing is not to lose them!Being blind and suffering from Multiple Sclerosis it is easy done
{ 5 comments… read them below or add one }
Interesting blog:) I look forward to further information.
I won’t be able to thank you enough for the posts on your site. I know you placed a lot of time and energy into all of them and really hope you know how deeply I enjoy it. I hope I am able to do a similar thing for another individual someday.
What would all of us do minus the amazing thoughts you discuss on this blog? Who else comes with the perseverance to deal with crucial topics in the interest of common subscribers like me? My partner and i and my buddies are very lucky to have your blog among the types we generally visit. We hope you know how significantly we get pleasure from your work! Best wishes from us all.
Want a wonderful meaning full story , I myself was told a few weeks ago I have ms , after losing my sight , and all the other thing that come with ms , you story was heart warming thank you
Yes it can be a bit of a shock.I had noticed my worsening balance and sight for some years,though I believe now I was in denial.If you have a good team of neurologists,you should be OK.They will presscribe what medications they are allowed to by law.
There are some very good support sites out ther.The one I use quite often to chat and get some sort of assistance is MS society.co.uk
Keep following these pages as I do try and follow what is going on with regards To research and new medications
Best Regards
Greg
{ 1 trackback }